Links

National Association of Laryngectomee Clubs       http://www.laryngectomy.org.uk/
"The formation of a National Association of Laryngectomee Clubs (NALC) arose out of a meeting on 12 May 1975, at Charing Cross Hospital, London, where a number of laryngectomee patients from three London clubs met together, with the knowledge and support of clubs in Birmingham, Bristol and Nottingham. The proposed Association would be responsible for looking after the interests of all laryngectomee patients.
Today, NALC has almost 100 clubs nationwide and offers a range of services to Laryngectomees and their families and carers. A major role of the clubs is to provide the sort of non-medical help and information that can only come from the experience of living with a laryngectomy.
The Association endeavours to publicise, by all means, the problems of the laryngectomee and to encourage understanding by the general public"
           
The South Bucks Association for Speech & Communication Help (SBASCH)   http://www.sbasch.org/
See the SBASCH page for more information and the latest diary of social events

Throat Cancer Foundation    http://www.throatcancerfoundation.org/
An organisation dedicated to providing support and information to all those affected by throat cancer. (See article in the ' News' page to find out more).
  
Support for People with Oral and Head & Neck Cancer        www.spohnc.org/
Useful US Website offering ‘Support for People with Oral and Head & Neck Cancer’, and includes motivational stories of people who have survived cancer, plus useful dietary tips, new treatments, and general well-being advice.
 
News of the 52 year-old Californian woman, Brenda Jenson, and her recent larynx transplant.           http://www.thaimedicalnews.com//?s=larynx+transplant
 
International Association of Laryngectomees        www.theial.com
A useful (US based) websites, formed in 1952 to connect and help many newly-formed Laryngectomee Clubs in America. Today it covers details on Laryngectomee resources, news, advancement in care and rehabilitation, and more. Also affiliated with ‘Web Whispers’ below...
 
National Cancer Intelligence Network Head and Neck Cancer Hub           
The National Cancer Intelligence Network Head and Neck Cancer Hub provides data and intelligence on head and neck cancers in England. It is aimed at a wide range of professionals working in the field, including NHS providers, commissioners, Cancer Networks, charities and clinicians. It also provides information and links for patients and the general public who wish to understand more about head and neck cancers. NALC is involved in the specialist NCIN Head and Neck group.
 
Emergency SMS Text Service to Police/Ambulance Service           http://www.emergencysms.org.uk/
The emergency SMS service lets deaf, hard of hearing and speech-impaired people in the UK send an SMS text message to the UK 999 service where it will be passed to the police, ambulance, fire rescue, or coastguard. Simply by sending an SMS message to 999 you can call for help and the emergency services will be able to reply to you.
FIRST - you will need to register your mobile phone before using the emergency SMS service.
Simply click on the Registering your phone link on the Website above for more information.
 
Webwhispers            www.webwhispers.org
A useful website containing many useful articles, advice, news and events concerning Laryngectomees in the US and around the world, and dedicated to ‘providing practical and educational information and support by way of the Internet to Laryngectomees and to all persons diagnosed with or treated for cancer that affects the larynx or those who have suffered damage to the vocal cords’.
 
National Tracheostomy Safety Project            www.tracheostomy.org.uk
The National Tracheostomy Safety Project aims to improve the care of patients with a laryngectomy or tracheostomy by ensuring medical staff are familiar with their needs, especially in emergency situations. NALC is a partner in the project.
 
Macmillan Cancer Support                    www.macmillan.org.uk
Covers the Macmillan Home page, which includes ‘About Macmillan’, How We Help’, ‘Cancer Information’ Online Community’ and many other important areas. This website also currently features a ‘New Financial Guidance Service’ which offers expert Benefits Help and Support advice on claiming the benefits you may be entitled to. It also includes a section for general questions to be answered about cancer (Or ‘phone 0808 808 00 00 – Mon-Fri, 9am – 8pm).
Now in its 100th year, Macmillan Cancer Support offers a myriad of help services covering all areas of cancer, treatments, rehabilitation, pre and post operation help and advice, welfare and benefits help, fundraising, local events, sports activities, plus a whole collection of valuable and helpful free information publications – books, leaflets, newsletters - and more!

Naturally, the subject of Laryngectomy - its treatments, recovery and living as a Laryngectomee - are well covered in many of Macmillan’s publications. Find these at:
 
 
All areas of Laryngectomy are covered, including ‘Head and Neck’ cancers. Below are links to other useful Macmillan care services and facilities across the UK:
Macmillan Cancer Support - main Website:
 
Covers more information on all Macmillan’s products and publications, plus latest clinical news, help services, reports and directories, and information sections, including ’Understanding Head and Neck Cancers’.
 
Macmillan’s Welfare Campaign: covers what progress the campaign is making, as the proposed Welfare Bill makes its way through Parliament.
 
Covers where to find your nearest Macmillan information and support area, and about local events, volunteering and sporting activities you could take part in.
  
Highlights a free Counselling Information service provided by Macmillan, which also includes useful information about many areas of therapy available. 


The Laryngectomee Guide.    http://dribrook.blogspot.co.uk/
The guide provides practical information to assist laryngectomees and their caregivers in dealing with medical, dental, and psychological challenges. Topics covered include the diagnosis and treatment of laryngeal cancer; side effects of radiation and chemotherapy; methods of speaking after laryngectomy; and how to care for the airway, stoma, heat and moisture exchange filter, and voice prosthesis. Also addressed are eating and swallowing issues, preventive care, use of CT and PET scans, emergency situations, anesthesia, and traveling as a laryngectomee.

Itzhak Brook, MD, MSc, is an Adjunct Professor of Pediatrics at Georgetown University in Washington, DC. Dr. Brook is the past chairman of the Anti-infective Drug Advisory Committee of the Food and Drug Administration. He has done extensive research on anaerobic and respiratory tract infections, anthrax, and infections following exposure to ionizing radiation. Dr. Brook was diagnosed with throat cancer in 2006. Two years later he had his larynx removed and currently speaks with a tracheoesophageal prosthesis.